My So Called Dizzy Life

My Chronicles of Vertigo, Nystagmus, Imbalance & Dizziness

Happy Dizzy-versary to Me!

on May 27, 2013

It’s official.  Today is my one year anniversary of having a vestibular disorder!  Life is different once you have the dizzies.  I have come to think of life as Before Dizzy and After Dizzy

Before Dizzy, life was easier.  After Dizzy, life is more of an effort.  Before Dizzy, life was calm.  After Dizzy, life is unsteady.  Before Dizzy, the ground was solid.  After Dizzy, the ground is marshmallow.  Before Dizzy, life was “normal.”  After Dizzy, normal means dealing with fatigue, headaches, light-headedness, tinnitus that won’t shut up!, whirling sensations, and imbalance.  Before Dizzy, life was safe.  After Dizzy, life is unpredictable, uncertain, unsettled.  Before Dizzy, life was comfortable.  After Dizzy life is bumpy.

OK, so I’ve established that life changes after having the dizzies.  So…this may sound weird…I think it’s a day to celebrate.  I’m not saying that I’m happy to have the dizzies and I’m not celebrating the fact that I have the dizzies.  I just believe it’s important to acknowledge how far I’ve come.  Last June I had to use a walker to get around.  Today, I went on a 2 1/2 mile hike, with my trusty trekking poles.  I’m celebrating because I survived one year of dizziness!   Heck yeah, I’m proud of myself!

It is easy to feel down when you have a chronic illness.  It is easy to feel down when you have an invisible illness.  It is easy to focus on the negatives.  In the past year, I’ve learned that one of the keys to coping is to pay attention to the positives in your life.  Like focusing on simple pleasures.  Or focusing on the things that make you smile.  Or focusing on yourself and recognizing your own strength.

I encourage all the dizzies out there to celebrate themselves.  Celebrate your strength.  Celebrate your accomplishments, no matter how small.  Celebrate your bravery.  Celebrate your perseverance.   Celebrate your spirit.  Celebrate you.


4 responses to “Happy Dizzy-versary to Me!

  1. Marissa says:

    Congrats and well said!

    ~Marissa

    • Brett thompson says:

      Well done Emily. I am excited to share your accomplishments with our therapists. I see your blog was recently attached to the VEDA website. That’s wonderful. You have a great story to tell.

  2. Jude Vecol says:

    Wow, finally someone else dealing with the same things I am dealing with! Not Meniere’s or any of the other more common dizzy problems. Just simple neural damage, presumably from a viral infection. You are only the second person I’ve “met” in three years who has this.
    I have been coping (mostly) with this since 12/10/11. The day I woke up, walked into my kitchen and fell on my face. I am still severely limited in day to day life, although there have been some major breakthroughs. Primarily the elimination of the daily migraines with beta blockers and my increased functioning stamina through the routine use of a cane as a walking stick/balance pendulum. But I still deal with a variety of symptoms almost constantly.
    The invisibility and lack of public awareness of what I am coping with is very frustrating. Even my siblings still don’t understand. I tried working at one point once I was feeling partly better, but gradually the extra strain took its toll on my nervous system and I developed steadily increasing tremors and had to quit. I am uncertain what my future tolerance/ability will be, but at this point I am on disability and have yet to come up with at tolerable job option.
    I feel a little less weird and isolated knowing there is someone else who can truly relate. Thanks for creating your blog. And keep posting.

    • Emily says:

      Hi Jude,
      I’m glad you found my blog. 🙂
      I’m sorry that you’ve had to deal with the dizzies. I agree 110% with you – there is something reassuring in knowing that you’re not the only one out there with similar symptoms. It’s less lonely. I’m sorry that your siblings still don’t get it. Maybe send them a link to my blog (maybe with a note that says, “SEE? It’s not just *me*! 😉
      I get your frustration. I’ve been dealing lately with a lack of understanding from my co-workers and it’s driving me bonkers! (I’ve been forming a blog post about it in my head.) The worst is when they act like you are making things up/overreacting just because they cannot see your dizziness! I try to educate them, but that doesn’t work for everyone. I’ve figured out that while I can’t necessarily change people that frustrate me, I can change how I react to them. Plus, it helps to vent about them! 😉

      I’m always here if you need to vent!
      Emily

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