My So Called Dizzy Life

My Chronicles of Vertigo, Nystagmus, Imbalance & Dizziness

About Me

Dizziness aside, I’m a normal(ish) chick in my early 30s living in the beautiful state of Colorado.  I’m married to a super nifty husband, who is my best friend and we have three awesome dogs.  Hanging out with them makes my day.  When my eyes aren’t all googly, I enjoy reading, watching movies & tv, playing video games, couponing, puzzles, anything related to Halloween and being sarcastic.

I started this blog for therapeutic reasons.  Part of my Vestibular Physical Therapy is to try to do the things that I normally would.  Since I was on leave from my job due to my illness and couldn’t do the computer work that I normally would, I created this blog to get used to researching, reading, and typing on a computer.  I am hopefully helping to train my eyes to focus.   The other reason I created this blog is so I have a space to vent, to share what I learn about my dizzy disorder, and to post a little bit of positiveness.  I didn’t ask for this illness and I sure as heck don’t like it, but I’d rather use my energy to be positive and get better.

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17 responses to “About Me

  1. Nancy says:

    I love this! Despite your googley eyes, dizziness, and all those long medical conditions that I can’t retype without pain, I’m glad you found this great way to let us enjoy or hate, depending on what you’re going through, your present adventures in life. Thanks for sending it to me. 🙂

  2. Normalish? I wouldn’t go THAT far! 🙂 Thanks for doing this. It also helps those that are close to you understand and keep updated without always bothering you guys. You need to get well soon. The economy is suffering without your couponing trips!

    • Emily says:

      You guys never bother me! 🙂

      Acctually, I’ve been to the store a few times. I get weekly coupon drops from friends at work. Trying to desensitize myself to the grocery store and get used to it. Just walking down the aisles of the store, with the lights, and all the stimuli, having to turn my head from side to side is difficult. My physical therapist said to try it in small doses. Sooo, coupons are accepted! 🙂

  3. Candy says:

    Hi Emily,
    I kept bugging Ari as to how you are doing with this crazy disease. He told me and emailed your blog. How scary (oh you like scary) just not this kind. When one of your senses is effected life is harder. Sounds like you have accepted this challenge and going forward. We look forward to tea in Sept.

    • Emily says:

      Hi Candy!
      I am trying to keep up a positive attitude (which isn’t easy for a naturally pessimistic gal) Keep on reading the blog for more exciting tales of my road to recovery! 🙂

      I look forward to tea in September as well. 🙂
      Emily

  4. Lucy says:

    Hi, I’ve had a quick read of your blog ! Forgive me if you have mentioned this and u have missed this, but have you not thought you could have migraine associated dizziness that can be a chronic 24:7 state and occur with or without the headache! That’s what I have and my symptoms are similar to yours I’m doing vrt avoiding trigger foods and on medication which mostly works!

    • Lucy says:

      * I have missed this*

    • Emily says:

      Hi Lucy,
      I’m so glad you found my blog! 🙂 Yes, my doctor *suspects* that I have Migraine Associated Dizziness. I am so curious to talk with another person who has been diagnosed with MAD! How did the doctors determine that you have Migraine Associated Dizziness? And was it Vestibular Neuritis that triggered it or something else? And would you mind sharing what medication you take that is working? The doctor that I have been seeing first tried me on Verapamil for about 6 weeks and it was horrible for me. It made me feel 10 times worse. I kept getting awful dizzy spells and just felt “off” all of the time. I have just started taking a new medication (Diamox) three days ago and I am hopeful. I’ve been procrastinating writing a blog post about this but if this new medication doesn’t work, then I don’t have many options left. The doctor said that it was my last hope as far as drugs go. Then he would recommend the intratympanic gentamicin injections. I was also given a list of trigger foods to avoid, but I admit I haven’t been adhering to it. The list had foods that I eat multiple times a week like avocado and beans. It had yogurt on it and I eat that every day! I don’t want to give them up. I guess it confuses me because I could eat those foods 7 months ago without feeling dizzy.
      Emily

      • Jude Vecol says:

        Sorry to bombard you with posts on my first visit, but…
        I developed migraines as a result of my neuropathy, but about a year and a half in I went for a follow up with my ENT neurologist and he determined that they had become self sustaining. I don’t remember if he mentioned MAD. He was surprised that the beta blockers I was taking for high blood pressure weren’t helping, so he increased my dosage. Within a couple of weeks the migraines were mostly gone. Two years later and I am mostly migraine free. I’ve had a few in the past year, but nowhere as severe as what I was getting daily before.
        I have no idea if beta blockers would help you, but figured I’d mention it.

      • Emily says:

        Hi Jude,

        Thanks for the info; I appreciate you sharing it with me. While I love the idea of being migraine-free, I admit that I hate taking a lot of medications. I am no longer on the Diamox. Maybe in the future I’ll try another medication to help me cope…

        Emily
        p.s. You are definately not bombarding me with posts! It’s nice to know that I’m not just writing to myself. 🙂

  5. Nancy gomez says:

    Hi Emily.

    I too suffer from vertigo. I can so relate to everything you write about. I have been a wobbly for 18 years! I also live in Colorado. Frederick. Email me if you get a chance. It would be nice to chat. I think I need those trekking poles!

  6. Marissa says:

    Just checking in. Hope all is well! 🙂

    Much love,
    Marissa

    • Emily says:

      Hi Marissa!
      Sorry that it took me over three months to respond (pretty lame of me!!) Aparently, I forgot to read the memo that having a Vestibular Disorder is exhausting! I just haven’t had the energy to do everything I would like to do, so this blog was neglected…but I’m back! I hope you are doing well.
      Thank you for checking in!
      Emily

      • Marissa says:

        Don’t sweat it! I can honestly say I totally get it. 🙂 The vestibular disorder fatigue is something else. Keep blogging girlie!

        Much love,
        Marissa

  7. HEY EMILY, I FEEL FOR U, TOO. I HAVE MS C VERTIGO. IT’S PURE HELL, SENSE I HAVE IT 24/7 EVERY DAY! I DON’T GET SICK, THANK U, LORD, BUT I JUST GET SO TIRED, I’M TELLING U THINGS THAT I’M SURE U UNDERSTAND. I WAS LOOKING FOR A BLOG ABOUT MS/VERTIGO, BUT COULND’T FIND ONE. WHAT’S THE DIFFERENCE WHEN ONE GETS DIZZY, THEY ARE DIZZY. WONDER Y THEY CAN’T FIND A CURE FOR THIS DISEASE? WELL, BEING AN RN, I KNOW, IT’S ALL ABOUT MONEY, SAD TO SAY, BUT JUST SAYIN! THANKS FOR STARTING THIS BLOG, I COULDN’T BELIEVE ALL THE PPL WHO HAVE THIS HORRIBLE NIGHTMARE. I’M GOING TO START DOING THE EXERCISES, HEY IT CAN’T HURT! GOD BLESS YOU, EMILY JANIE MAHONEY GARRISON

    • Emily says:

      Hi Janie,
      I’m so sorry for the delay in responding to you. (I, unfortunately, just haven’t had the energy to do everything I would like to do, so this blog was on the back burner…)
      I’m sorry to hear about your vertigo – it is truly pure hell and no one should have to deal with it. Just keep staying positive and you can get through it.

      Best Wishes,
      Emily

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